このコースについて
3.8
9件の評価
3件のレビュー

100%オンライン

自分のスケジュールですぐに学習を始めてください。

柔軟性のある期限

スケジュールに従って期限をリセットします。

初級レベル

約11時間で修了

推奨:5 weeks of study, 2-3 hours/ week...

英語

字幕:英語

100%オンライン

自分のスケジュールですぐに学習を始めてください。

柔軟性のある期限

スケジュールに従って期限をリセットします。

初級レベル

約11時間で修了

推奨:5 weeks of study, 2-3 hours/ week...

英語

字幕:英語

シラバス - 本コースの学習内容

1
3時間で修了

What is on Your Mind?

In this module, we will introduce the subject of genetic privacy. In a time in which more and more genetic material and information is being stored in biobanks, research labs and private companies, the urgency to consider the concept of ‘genetic privacy’ becomes all the more pronounced. We will discuss different practices dedicated to the disclosure and application of genetic data, and we ask you to reflect on your initial stance towards these practices. ...
3件のビデオ (合計12分), 9 readings, 1 quiz
3件のビデオ
Course Introduction3 分
Genetic data: Practices of disclosure7 分
9件の学習用教材
Course Overview10 分
Meet the instructors & the team5 分
Welcome to Leiden University5 分
Community Guidelines & Academic Toolkit10 分
Complete our short survey10 分
Sources and video material30 分
How do you extract DNA?5 分
Download your Learning journal3 分
Learning journal - Step 120 分
1の練習問題
What do you think about genetic privacy?30 分
2
2時間で修了

Open up Your Mind

This part of the course will stimulate you to reflect critically on the different types of practices that work with genetic data, among which the Personal Genome Project initiated by George Church. You will get familiar with the ethical questions that these practices could raise. Furthermore, you will be encouraged to think about what the concept of genetic privacy means to you personally. What actually is genetic privacy? And what are the borders of its definition? How can we define the border between individual autonomy and public interest? Where do you place this border yourself? ...
2件のビデオ (合計7分), 3 readings
2件のビデオ
What is genetic privacy?5 分
3件の学習用教材
Interview with George Church10 分
Sources and video material30 分
Learning journal - Step 230 分
3
3時間で修了

Connect your mind

This week we will enrich the ethical debate around genetic privacy by viewing the subject from the perspective of art and culture. We will see how artworks and cultural objects can foreground the ambiguities, emotions and (cultural) assumptions often neglected in mainstream debates around biotechnological developments. Moreover, we will explore the potential of art to allow new publics to arise in the discourse around genetic research. In this module, we would like to make you aware of how your own emotions and expectations might influence your stance on the subject. From there on, you can get to a more nuanced point of view towards the issue of genetic privacy....
4件のビデオ (合計12分), 4 readings
4件のビデオ
How can art enrich the debate around genetic privacy?5 分
Art as a space for disruption - Intro36
Art as a space for disruption5 分
4件の学習用教材
Sources and video material30 分
Interview with bioartist Adam Zaretsky4 分
Sources and video material30 分
Learning journal - Step 330 分
4
4時間で修了

Make up your mind

Different groups of people with sometimes opposing interests take part in the public debate around the disclosure and application of genetic data. For example, patients, consumers, researchers, corporations, or politicians. These groups, or stakeholders, bring forward diverse arguments to advocate their position. Their arguments are often formed by emotions, gut feelings and cultural values. In order to regulate the disclosure of genetic data, while taking into consideration the notion of genetic privacy, we have to identify the different stakeholders and their values present in this debate. ...
5件のビデオ (合計16分), 2 readings, 2 quizzes
5件のビデオ
Podcast CEO of Hartwig Medical Foundation4 分
Podcast Patient3 分
Podcast Mother of three3 分
Podcast Professor of digital cultures4 分
2件の学習用教材
Source and video material30 分
Learning journal - Step 4
1の練習問題
Let's recap!30 分
3.8
3件のレビューChevron Right

人気のレビュー

by RHMay 22nd 2018

Great information on a topic that I have never really given much attention to. Great instructor and the course is well laid out. Strongly recommended.

講師

Avatar

Lotte Pet

Art historian and artist
Faculty of Humanities, Leiden University
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Robert Zwijnenberg

Professor of Art and Science Interactions
Faculty of Humanities, Leiden University

ライデン大学(Universiteit Leiden)について

Leiden University is one of Europe's foremost research universities. This prominent position gives our graduates a leading edge in applying for academic posts and for functions outside academia. Leiden University is the oldest university in the Netherlands. It was founded in February 1575, as a gift from William of Orange to the citizens of Leiden after they had withstood a long siege by the Spanish. Our motto is: Praesidium Libertatis — Bastion of Liberty....

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